Dame Fiona Caldicott: Talking with citizens about expectations for data sharing and privacy
The UK National Data Guardian asked a citizen's jury to tell her what uses of confidential patient information it's reasonable to expect. Source: www.gov.uk
The UK National Data Guardian asked a citizen's jury to tell her what uses of confidential patient information it's reasonable to expect. Source: www.gov.uk
23andMe's CEO Anne Wojcicki announced on 26 July that 23andMe is working with drug maker GlaxoSmithKline (GSK) to develop new drugs and treatments using the genetic data the company has on file. Read more
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Direct-to-consumer genetic testing first came on the market about a decade ago, but I resisted the temptation to see what health information is hidden in my DNA — until now. Full article at ScienceNews
Corporation suggests changes are response to Cambridge Analytica scandal, with EU set to toughen data protection rules in May. To the full article
Health tech companies are making a big push to digitize medicine, introducing novel tools like digital pills that track when patients take their drugs and smart spoons that can automatically adjust to hand tremors. Now [...]
Während Blockchain von vielen vor allem mit der Kryptowährung Bitcoin in Verbindung gebracht wird, sind die Einsatzmöglichkeiten für die Technologie tatsächlich deutlich vielfältiger. Aufsätze zu bankenrechtlichen Fragen von blockchainbasierten Währungen gibt es zu Genüge. Dieser [...]
Mahsa Shabani & Pascal Borry in the European Journal of Human Genetics 26:149–156 (2018) Genetic data contain sensitive health and non-health-related information about the individuals and their family members. Therefore, adopting adequate privacy safeguards is paramount [...]
You wouldn’t guess it from the news, but scientists are in public favour the world over. “There is a sense of mourning among scientists who worry that the public doesn’t like them,” says social psychologist, [...]
Federal regulators approved the first direct-to-consumer test for the BRCA genes, which increase the risk of breast and ovarian cancer, the agency announced on Tuesday. To the article (Scientific American)