Large sets of health data can enable innovation and quality measurement but can also create technical challenges and privacy risks. When entities such as health plans and health care providers handle personal health information, [...]
An interview with Richard Stephens, Chair of the NCRI Consumer Forum, on catapult.org.uk.
Comments made by the UK Health Secretary Matt Hancock over plans for the NHS to offer paid-for genomic sequencing to healthy people who will agree to share the data produced have been widely reported this [...]
Ireland’s largest paediatric hospital has confirmed it is undertaking a review of processes in its clinical genetics department after the DNA samples of about 1,500 people were transferred to a commercial research company without the [...]
A proposed policy shift for Vermont’s health information exchange has spurred concerns about consumer confusion and patient privacy. Read the full article here.
John Mark Michael Rumbold and Barbara Pierscionek in the Journal of Medical Internet Research Vol 19, No 2 (2017) Background: The enactment of the General Data Protection Regulation (GDPR) will impact on European data science. [...]
Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation
Mahsa Shabani & Pascal Borry in the European Journal of Human Genetics 26:149–156 (2018) Genetic data contain sensitive health and non-health-related information about the individuals and their family members. Therefore, adopting adequate privacy safeguards is paramount [...]
You wouldn’t guess it from the news, but scientists are in public favour the world over. “There is a sense of mourning among scientists who worry that the public doesn’t like them,” says social psychologist, [...]
Some scientists might be surprised by a piece of good news buried in Science and Engineering Indicators, a massive report released by the U.S. National Science Board last month. Overwhelmingly, surveys showed, Americans think that [...]