What Does It Mean To “Consent” To The Use Of Our Data In The Facebook Era?
As Facebook has struggled to contain the fallout from its latest privacy fiasco this week, the company has repeatedly emphasized that participants “consented” and granted their “permission” for what amounted to spyware being installed [...]
Shadow health records meet new data privacy laws
Large sets of health data can enable innovation and quality measurement but can also create technical challenges and privacy risks. When entities such as health plans and health care providers handle personal health information, [...]
A patient’s perspective on using samples and data for research
An interview with Richard Stephens, Chair of the NCRI Consumer Forum, on catapult.org.uk.
Proposals for paid-for NHS genome sequencing service
Comments made by the UK Health Secretary Matt Hancock over plans for the NHS to offer paid-for genomic sequencing to healthy people who will agree to share the data produced have been widely reported this [...]
Hospital investigates release of DNA samples to research firm
Ireland’s largest paediatric hospital has confirmed it is undertaking a review of processes in its clinical genetics department after the DNA samples of about 1,500 people were transferred to a commercial research company without the [...]
Facebook‘s 10 Year Challenge is just a harmless meme – right?
If you use social media, you've probably noticed a trend across Facebook, Instagram, and Twitter of people posting their then-and-now profile pictures, mostly from 10 years ago and this year. What if these [...]
Digital medicine startup Proteus Digital Health pushes into oncology
Proteus' new oral oncology drug is a digital version of capecitabine, a common chemotherapy medication often used to treat breast and gastrointestinal cancers. Read the full article here.
App monitors breathing to detect opioid overdose
A new app that uses sonar to monitor breathing rate can sense when someone has overdosed on opioids. Read the full story.
Detecting depression: Smartphone apps could monitor teen angst
Rising suicide rates and depression in U.S. teens and young adults have prompted researchers to ask a provocative question: Could the same devices that some people blame for contributing to tech-age angst also be used [...]
Blockchain-based informed medical consent
Rational Surgical Solutions (Rational) is offering its Rati-Fi blockchain-based process for confirmation of informed consent for surgical or medical interventions. Read more here.
Health record sharing consent change causes concern
A proposed policy shift for Vermont’s health information exchange has spurred concerns about consumer confusion and patient privacy. Read the full article here.
